Monday, September 14, 2015

Sorry for the late update. We have been enjoying our summer. My eldest is back in school. We are so happy she still loves school and loves to learn. 

Monkey had all her testing from school. We received the results last week. She did not qualify at this time for special services. Once her neurologist gives her diagnosis, they will reevaluate her. We liked everyone at the school. We see how the process works, and have numbers to contact once she is done being evaluated with her neurologist. We know IQ wise, her IQ is good. Her issues are still behavioral. She scored low in adaptive and personal-social areas, but they said even though she was low average, it was not low enough without a diagnosis to receive services with the school system. We have known a few people that went through the same thing. Once the doctor stated a diagnosis, the school changed their decision.

Speech therapy has been such a blessing. Her speech is much clearer, and her problem eating is easily handled. She is trying new foods, still with resistance, but without all the drama, at least most of the time. She now LOVES barbecue chicken. (Happy dance)

She should start physical therapy soon for controlling her meltdowns. The physical therapist will show her how to help herself when her sensory issues are too much. 

She is scheduled for her first brain scan (EEG) at the end of October. 

Monkey is VERY excited, as is her sister, for all the new fun stuff coming up since it is finally hitting Fall. 

Recently I posted about My Buddy Tag. I am impressed. I put it on Monkey and we went to Chucke Cheese, and then to a Halloween store. The tag worked great especially in the Halloween store where she kept running away while I was helping her sister look for a costume. As soon as she started to go to the back of the store, my phone would go off and show me she was out of range. I could then bring her back. I watched her a few times do this and again, the Buddy Tag immediately showed me she was out of range. My only complaint was it was hard to put on. I bought the silicone one. I should have bought the Velcro one. 

Well, I think that is all on the updates.

Saturday, July 25, 2015

Locator bracelet

So on Zulily today, they were selling My Buddy Tags. My Buddy Tags' website is here. I ended up ordering one since the price ($24.99) was lower than normal ($39.99). Basically this bracelet uses our smartphones Bluetooth to help locate your child if he or she wanders off. It also has an alarm if your child is in the water. Most GPS locating bracelets need a monitoring fee plus the outrageous price of the bracelet, but with My Buddy Tags, you only buy the bracelet and then download the free app to monitor your child. 

This would be neat when on vacation, at the zoo, playground or a big birthday party. We have been fortunate to not have lost our young child, but I like the idea of having this on her wrist as an added precaution. 

I look forward to updating later once I receive the bracelet.  Does anyone own one? 

Friday, July 24, 2015

School meeting



We met with the school. They agreed she qualifies for testing. She will begin with that in August when the nurses return to start testing her vision and hearing. Then other tests will follow.

She had her second speech therapy appointment. The speech therapist performed another test on her and then started working with her problem eating. My little monkey got highly upset and cried, ran around the room, tried to leave, would not look at the food, rocked, sucked her fingers, and screamed. Just looking at food, she hates, freaks her out. She was told to state she would not care for that instead of I hate that. Last night, we put broccoli on the table just for her to see. She looked at it a few times, but did not freak out. At one point, I asked her if she wanted to try a bite, she avoided my eyes, and stated, “I do not care for that.” Much nicer dinner! As much as I hated to see her upset, I already see progress.

Wednesday, July 15, 2015

Update after seeing Speech Therapist



We enjoyed speech therapy. She was nervous at first, but she finally warmed about half way in. She enjoyed the testing. She is missing some sounds. She is a problem eater, not a picky eater. Since insurance will not pay, and her speech is not too far behind, we are going to go once a week and work on a few problems. She will give me some ideas for home so the whole family can work with her. She is also going to help when she sees negative behaviors by reinforcing positive ones. I feel really good about this.

I am also going to make her a picture schedule to help her not have so much anxiety about what we are always doing each day. Speech therapist was the second person to recommend this.  

A little funny: Monkey was being asked her body parts by the speech therapist: "Where is your forehead?" Monkey pointed to her neck, then looked at the speech therapist and exclaimed: "I only have one head!"