Saturday, October 24, 2015


So this week, Monkey had her EEG and MRI. Since the doctor was running late, and he is the one that gives the sedation medication, the nurse tried to give Monkey her EEG without the sedation. Since the sedation would last so much longer than the MRI medication, this was a good thing. Monkey hated it, but she did much better than we would have thought. The nurse took it slow. She stopped many times. We watched the movie Frozen, and the nurse did not wrap her head since she has sensory issues. 

When it came time for the MRI, two nurses came in and gave Monkey her IV. It was very scary for her, but the nurses did awesome at it. They were so quick, and wrapped her hand in bright colorful tape and left her alone for a while afterwards. We watched more Frozen. They even bought her some matching cards that she loved. We had bought her a new Pinky Pie Pony to give her right before the IV so she had something to focus on. Eventually, we took her to the MRI room, and she was given her meds. The medication took effect so quickly. It was scary to watch, but the doctor told us how she would react (facial expression and eyes) and how fast it would be. We were very thankful for his conversation. MRI took a little over 30 minutes and then she was carried in. She slept without moving for about 20 minutes. This child is never still even while sleeping so that was a little nerve wracking. After she woke up she had to drink some Gatorade to see how she was doing. We asked her before her meds what she wanted to do when we left and she said go to Chickfla. 

So after she was released, we took her to Chickfla. She could barely ate without believing she was going to throw up, poor kid, but she ate a bite here and there. She drank some sprite and then played slowly on the playground. We stayed a few hours. 

After we got home, she started to act more like herself and finished her chicken nuggets. Before the evening was over, she was snacking on everything. She was VERY hyper, but other than that, was fine. 

We will find out the results next week.

Thursday, October 15, 2015


Monkey has been to two PT sessions because she is sensory driven. Physical therapist is sure she has sensory processing disorder. She also was put in a compression vest with weights and wore it to speech. She never moved. I have never seen her this still in her lifetime. It was quite incredible. I am looking forward to seeing if she has the same response next week. If so, I think, I am going to take the chance and buy one for her. They are quite expensive. PT thinks it would help her sit and learn her letters since she still struggles with this. 

Next week, she has her EEG, and MRI tests. 

Halloween is coming. Both girls are excited, then we have the local Fair, and all our birthdays. Of course, Thanksgiving, Christmas parties and then Christmas. Love this time of the year. Whereas it is fun, it is more time for Monkey to get upset because of all the sights and noises. I am hoping since we are all trying to figure this out, that this year will be easier for her.